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Lewy Body Journal: Our Family's Experience with Lewy Body Disease
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Lewy Body Journal

When our mother was diagnosed with Lewy body disease in 1999, we had never heard of it. Little information was available in plain language that explained what this disease was, how it would progress, or how we were supposed to care for Mother. That's why we created this website. We hope it helps others who may be enduring what we have gone through.

Mother passed away in May 2006, so the journal of our experience is now complete. We will continue to add stories sent to us by others and any news about Lewy body disease.

With deep regret we announce that our father passed away in March 2007, ten months after our mother. More about Dad.

What Lewy Body Disease Is
Lewy body disease is thought to be the second most common form of dementia. It causes cognitive problems similar to those seen in Alzheimer's disease and motor problems like those in Parkinson's. It's also referred to as dementia with Lewy bodies, Lewy body dementia, diffuse Lewy body disease, senile dementia of Lewy body type, and Lewy body variant of Alzheimer's disease.
The Journal is a chronicle of Mother's medical history, her decline, and how we've cared for her. This is the heart of the Web site.

Other People's Stories
We've heard from many people telling us about their loved one with Lewy body disease. Here are some of their stories.

Our e-mail address and interesting correspondence we've received.

This section is an index of topics and practical information with links to the relevant parts of the Journal.

Are you looking for more information about Lewy body disease? Would you like to find out about e-mail groups, message boards, and support groups?

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